Thursday, 23 May 2013


Severe and Multiple Disabilities – ASSESSMENT

By Jeanette, Jennifer, Lynn, and Shea

 The assessment of children with severe and multiple disabilities is a great challenge to clinicians. It is extremely difficult to collect accurate data in the traditional methods of assessment. Clinicians need to use diverse means to study and determine a child’s disabilities. A multi-disciplinary approach needs to be used to assess the impact of the combination of disabilities, the possible causes, the possible outcomes, and the strengths of the child to cope. Ideally this is done through a team approach, consisting of skilled practitioners and care givers. It takes many hours of testing and observation.

 
ASSESSMENT OF HEARING

Children with multiple disabilities may not respond to auditory stimulus for a variety of reasons. They may not be able to hear or they are inattentive. Clinicians working with such children need to use a wide range of sophisticated techniques to assess their true auditory status. For these children, audiological assessment is divided into two major methods: electrophysiological and behavioural (Winzer, 2008, p. 498).

Electrodiagnostic procedures provide information regarding responses to auditory stimuli. They include electroencephalography-evoked (EEG) response audiometry. This is also known as auditory brainstem evoked response. By evaluating a child’s brainwave patterns, an estimate of hearing and loss can be made. This method tests the physical elements of hearing, not whether a child has the ability to interpret the auditory stimuli (Winzer, 2008, p. 498).

Behavioural testing gives further comparative results that may be used for prognostic purposes. These methods include observation of behaviour, reflex audiometry, and play audiometry. These methods involve watching children’s responses to sound and its source.  Children over the age of two can be assessed using play audiomety as a technique to observe how a child performs an activity in response to sound (Winzer, 2008, p. 499).

 
ASSESSMENT OF VISION

Electrodiagnostic procedures assess the electrical activity of the optic pathway and occipital cortex of the brain. Behavioural measures include field tests that use objects and lights. Functional tests assess the visual behaviour of a child, such as tracking objects, using visual fields, and development of eye-hand coordination. (Winzer, 2008, p. 499)

 
PSYCHO-EDUCATIONAL ASSESSMENT

For children with severe and multiple disabilities psycho-educational assessment is a compilation of many separate but equally important goals. This type of assessment investigates and attempts to measure the child’s overall level of intellectual function, the child’s impairments, and the child’s strengths. These assessments should be ongoing and preformed on a regular (yearly) basis. This assessment data is used to develop an individual educational plan (IEP) and appropriate placement (Winzer, 2008, p. 499).

When assessing children with severe and multiple disabilities it is very important to consider the environment or setting the testing is taking place in. Adaptations may need to be made to create an environment that is as natural to the child as possible. The practitioner needs to establish a rapport with the child and the family. The testing needs to take into account the child’s abilities and if it is relevant.

In psycho-education testing, direct observation is the primary procedure. “Arena testing is an observational assessment approach in which people from several disciplines focus on their particular domains within the context of play. Activity-based assessment measures functional skills; collaborative ongoing assessment follows a child through a day's activities” (Pearson Education, 2010). Questionnaires and interviews conducted with parents and teachers are important indicators of a child’s strengths.

Educational assessments focus on functional areas of competence in the domains of communication, social behaviour, self-help, and independence skills.
 

STRUCTURE FOR PSYCHO-EDUCATIONAL ASSESSMENTS

Type of assessment
Purpose
Examples
Academic achievement
To identify level of performance, Identifying specific academic achievements
Achievement tests Diagnostic tests
Learning/thinking skills
To explore/assess skills used in learning and thinking
Concentration, memory, learning style, perception, questioning skills
Intellectual
To explore strengths/ weaknesses in learning. Identify current levels of intellectual functioning
Intelligence scales
Personality/emotional
To explore personal factors which may affect learning
Personality tests Self-esteem inventories
Behaviour
To explore behavioural factors affecting learning
Behaviour checklists and rating scales
Physical/medical (to be carried out by a medical practitioner)
To identify any physical/ medical problems that may interfere with learning
Neurological examination, vision, hearing, general medical examination

Source: Alberta Education (1994) Standards for Psycho-Educational Assessment (Desforges & Lindsay, 2010, p. 68)

 
 
REFERENCES

Desforges, M., & Lindsay, G. (2010). Procedures used to Diagnose a Disability and to Assess Special Educational Needs: An International Review. Retrieved May 19, 2013, from NCSE: The National Council for Special Education: http://www.ncse.ie/uploads/1/5_NCSE_Diag_Ass.pdf
 
Pearson Education. (2010). Children with Exceptionalities in Canadian Classrooms. Retrieved July 2012, from Pearson Education: http://wps.pearsoned.ca/ca_ph_winzer_children_8/66/16943/4337609.cw/-/t/index.html
 
Winzer, M. (2008). Children with Exceptionalities in Canadian Classrooms. Toronto: Pearson Prentice Hall.

 

5 comments:

  1. Assessments for children with severe or multiple disabilities can be an incredible challenge. For parents and the children themselves it can feel all consuming and overwhelming. When my daughter was young we started the long road of assessments. She has had: a neuropsychological assessment that took two full days (in a hospital setting and in her own classroom setting); EEG’s that average 2 hours each, every couple of years; a Video EEG that is a full day assessment matching video coverage to the digital EEG; CAT scans; MRI scans; Autism screening that took several hours; Autism assessment that took several hours; and many physical tests such as biopsies & blood work. Not only do the actual assessments take a long time, there is also the travel time to get to the specialist that are never in your local community. There then seems to be a million doctor appointments to get the referral for the assessments, the prep for the assessment and then the follow up after the assessment. I could go on and on, but my point is that assessments are important and as a parent you will do whatever it takes to help your child. The more you know about what your child is dealing with the more you know how to assist them and the more you can ask for assistance from agencies. However, there does come a time when you need to consider the quality of life for your child with the never ending pursuit of assessments. Acceptance is okay.

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  2. Unfortunately students have to wait a long time to get assessments through the school system, and like you said Jennifer it is exhausting. If only there was a faster simplier way to get an answer.

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  3. I do not know enough about the assessment process, but I wonder if there was a 'case manager' (perhaps a family doctor) to oversee and manage all the information? If you go to one specialist who sees symptoms one thing and another who sees symptoms of another disability are they communicating with each other? Its seems that this process can be riddled with stumbling blocks based on communication.

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  4. The process of assessment is a continuous one. Children grow and develop. An assessment done at the age of 3 may not be the same as one done at the age of 8. It is a long road.

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  5. For any child with an exceptionality, a multi-disciplinary approach needs to be used to assess the impact of the disability, and the possible causes. It is unfortunate that students have to wait for an assessment. I intend to read more about what is involved in the assessment process.

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